Share your experience to improve our care

At the Netherlands Cancer Institute, we believe it is important to involve our patients in improving our care. Do you feel involved with our hospital and would you like to think along and share your experiences? This can be done in various ways. Of course, you can share your experiences directly with your healthcare provider. In addition, there are the following options:

  • Antoni van Leeuwenhoek Patient Panel
  • Questionnaires
  • Zorgkaart Nederland
  • Sounding board and advisory groups

Below you will find an explanation of the different methods.

Antoni van Leeuwenhoek Patient Panel

The Netherlands Cancer Institute has a digital patient panel in which we investigate a topic 4 to 6 times a year on the basis of a questionnaire. This questionnaire is about, for example, your experiences with our provision of information, with a fixed contact person or with myAVL.

Of course, we would love it if you – together with more than 800 other panel members – think along with us in this way! You can register for the panel below. Participation is of course always without obligation.

View the results of the UnderdeSearch among our panel

MijnAVL bezoeken via laptop
I think feedback from patients is essential to ensure that the NKI functions properly and to improve where necessary. I appreciate the AVL team very much and enjoy making my contribution.
Panel member AVL Patient Panel

PREM and PROM questionnaires

At the Netherlands Cancer Institute, we use PREM and POM questionnaires.

PREM: Patient Reported Experience Measures

This questionnaire measures how patients experience the care and service at the Netherlands Cancer Institute. Every year, more than 2,000 patients share their opinions. They appear to be particularly satisfied with the expertise of, interaction and treatment by healthcare workers, followed by the atmosphere within the hospital. The biggest points for improvement: waiting times and (information about) aftercare.

If you want to know more about the results, look here.

Participation

We approach our patients by email one month after the start of treatment. This can be an initial treatment or a follow-up treatment. We approach patients with the PREM questionnaire no more than once every 9 months and we only approach patients who have given permission for us to email them when registering with the NKI.

Questionnaire

It takes about 7 minutes to complete the questionnaire. The answers are processed anonymously. The questionnaire also asks whether some answers may be forwarded to the platform ZorgkaartNederland.nl which can also inform other patients about their experiences within the NKI.

man aan tafel hal centrum patienteninformatie
Good care should not only come from one side, I also want to let people hear how the recipient experiences the care, only together can we make care (even) better.

PROM: Patient Reported Outcome Measures

This measures how patients experience their quality of life. This contains questions about, for example, pain, fatigue and emotional state. You will complete these questionnaires at different times before, during and after your treatment.

Read more about the PROM questionnaire

Sounding board and advisory groups

Within the Netherlands Cancer Institute, we have several advisory groups in which patients can participate to think about how we can improve patient care.

Patient Council

The Patient Council represents the common interests of patients who are dependent on the care of the Netherlands Cancer Institute. The Board thinks along about topics that are important to the patient and gives solicited and unsolicited advice to the Board of Directors.

Read more about the Patient Council

eHealth Steering Group

Digital solutions are playing an increasingly important role in healthcare. Think of MijnAVL, video consultations, the use of VR glasses, etc. Within the eHealth steering group, patients, healthcare providers and employees of the ICT department look together at the opportunities to use digital solutions within the NKI. The steering group advises on the goals in the field of eHealth. For each project, we look at how best to meet the needs of patient and healthcare provider.

Questions and comments

If you have any questions/comments about this subject, you can always email patientenfeedback@nki.nl.