PROMs questionnaires

Quality of life questionnaires

At the Netherlands Cancer Institute, we think it is important that you receive good care. Good care is about living longer and also about your quality of life. That is why we ask you to fill in questionnaires, the PROMs. PROMs stands for Patient Reported Outcome Measures. These are questionnaires in which we ask you how you are feeling and how you are doing. The questions are about, for example, pain, fatigue, and your emotional state.

By completing the questionnaires, you will gain a better understanding of how you are doing. Now and over time. This helps you to gain more control over your own health. If your caregivers know how you are doing, they can work with you to better tailor care to what you want and need.

Information video

As a hospital, we would like to know how you are doing and whether you are satisfied with us. That is why we will send you a questionnaire. In this short video from NFK we tell you more about this questionnaire.

Received email

You have received an invitation via your email.

Click on Fill in questionnaire.

Can't find the e-mail anymore? Open your internet browser and go to mijnavl.nl. Click log in.

You will see the page below. Click on login (red button)

I can now log in with your DigiD.

Log in with DigiD

Do you have the DigiD app on your phone? Then you can click on With the DigiD app.
Don't have a DigiD app? Then click On With an SMS verification.

Are you unable to log in?

Look here for tips.

Don't have a DigiD?

Without DigiD you cannot log in to MijnAVL.
Call the Digi-D helpdesk to apply for a DigiD on 031-88 123655.

To the questionnaire

After logging in, you will be taken to the main page of MyAVL.
Under the heading 'To do' you will find the preparation of your appointment.

Click on You have 5 open questionnaires to go to the questionnaires. Is there nothing left under 'Still to do?' Then you no longer need to fill in questionnaires.

Would you still like to go to the Questionnaires page? In the top menu, click on Questionnaires

Fill in the questionnaire

You will be taken to the Questionnaires page of MijnAVL. Click on Fill in (the red button) to fill in the questionnaires. You are supposed to fill in all the questionnaires.

Click on the dot next to the answer that suits you. Click Clear Answer to clear the answer.

The back button allows you to return to the previous page. You must complete the questionnaire in one go.

Are you ready?

Click on Send (the red button) to send the questionnaire to your healthcare provider.

In this video you can watch the steps again.

View your answers

You can view your responses by clicking on Questionnaires in the menu

Click View to see your own answers. You will see your
Answers in text.

In this video you can see all the steps.

Compare your answers

You can also compare your answers with the last time you completed the questionnaire.

Click on Questionnaires and look under Scores quality of life questionnaires (PROMS) on These scores can be viewed here.

The table shows your answers over time. Your answers have been converted into scores. Click here for more information about this table.

Would you like to read all the information about PROMs?

More information about PROMs can be found in MijnAVL. If you log in to MyAVL, you will find a folder about PROMs under the heading 'information'.

This video shows you how to do this.

By comparing the results of large groups of patients (anonymously), we gain more insight into the quality of our care. This allows us to continue to improve care.

You can also get started with your results yourself. For example, with the Kanker.nl Appstore for living with and after cancer. These are reliable, high-quality self-care apps and decision aids, collected in one place on kanker.nl. In addition, KWF now offers (former) patients or relatives a one-off credit of 100 euros to spend in the Appstore after registering on kanker.nl.

How long does it take to complete the questionnaires?

Completing it takes about 15 minutes.

I have not received an email with an invitation to fill in the questionnaires. What should I do?

It is possible that the e-mail has appeared in your spam mailbox.

It is also possible that you have received several emails from the Netherlands Cancer Institute and the invitation to complete the questionnaires is among them.

If you do not have an e-mail, you can log in to MyAVL yourself. Under the heading 'questionnaires' you will find the questionnaires that are available to you. These are the questionnaires that 'PROMs' stands behind. If there are no questionnaires here, you do not (yet) need to fill in PROMs questionnaires.

Are the scores of the questionnaire different from results from the lab?

Yes, the scores of the questionnaires are slightly different from results from the lab. The scores of the questionnaires say something about your general health, daily functioning and quality of life. The scores from the questionnaires give your healthcare provider insight into how you are doing.

I have not yet started my treatment, do I still have to fill in the questionnaires?

Yes, we ask you to complete the questionnaires before you start your (first) treatment. You will also complete the questionnaires during your treatment and after your treatment. This way, your healthcare provider can see how you felt before the start of treatment and whether/how this has changed during and after your treatment.

I feel well at the moment and not sick, do I still have to fill in the questionnaires?

Yes, you can also complete the questionnaires if you feel well at the moment. You will also complete the questionnaires during your treatment and after your treatment. This way, your healthcare provider can see how you felt before the start of treatment and whether/how this has changed during and after your treatment.

I have already completed PROMs in another hospital, do I have to fill in the questionnaires again?

We would like to emphasize that completing the questionnaires is part of your treatment. The questionnaires give your healthcare provider insight into how you are doing. This may have changed since you completed the PROMs questionnaires in another hospital.

I don't want to participate in the PROMs. How do I unsubscribe?

We would like to emphasize that completing the questionnaires is part of your treatment. The questionnaires give your healthcare provider insight into how you are doing. It is therefore important to fill it in as completely as possible.

If you still do not want to participate, you can cancel by emailing proms@nki.nl. Please state your name and date of birth when you unsubscribe.

PROMs questionnaires

Quality of life questionnaires

Information video

How does it work?

Practical guide

Instructions

Received email