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Biobank for blood and blood products

At the blood draw lab at the Netherlands Cancer Institute, we request to take an additional maximum of three tubes of blood once for future medical-scientific research. You decide whether you want to participate.

To participate, your written consent is required. Before you decide whether you want to participate in this blood test, you can read this leaflet. This leaflet contains information that you can use to consider whether you want to participate in this blood test. The studies are set up by researchers working at the Netherlands Cancer Institute.

Before you decide whether you want to participate in this blood collection, we would like to inform you about what this blood is used for.

Jacqueline Jacobs onderzoek NKI

Scientific research and the use of body material

Almost all knowledge about health and disease has been gained through medical scientific research. An important part of that research is carried out in blood. The blood is used for research into cancer risk, diagnosis and prognosis in patients with cancer, for example DNA testing for abnormalities in genes that may play a role in the development of cancer or research into components in blood that are related to cancer.
Read more about our research

What does participation mean for you?

You decide whether you want to have your blood taken and stored in the Blood Biobank to use it for scientific research. Whatever you decide about the use of your blood in scientific research, your relationship with the treating physician and the hospital remains the same. You will receive the same care in all cases. If you give your consent and your material is indeed used in research, you will not be informed of the results of the research.

If you wish to participate, we ask you to fill in the consent form that will be given to you at the blood draw lab. You can also hand in the form there. We request that you have a blood sample taken once, with a total of a maximum of 3 tubes of blood taken. This is a small amount of blood, which your body will replenish on its own.

During this research, something can very rarely be found by chance that is not important for the research but is important for you. If you or your family are at real risk of a serious condition for which treatment options are available, you will be informed by your treating doctor.

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Biobank leaflet for blood and blood products

Also check out our leaflet about our biobank for blood and blood products. You can read it online or pick it up at the Patient Information Center in the central hall of the Netherlands Cancer Institute.
View the brochure

Frequently asked questions

What do I give my consent for?

By filling in the consent form, you confirm the
next:

  • I have read the information letter. I was also able to ask questions. My questions have been answered sufficiently. I had enough time to decide whether to participate.
  • I know that participating is voluntary.
  • I consent to the collection and use of my blood samples for the purpose of answering future research questions.
  • I give permission to inform the general practitioner and/or treating specialist about coincidental findings.
  • I know that my blood will be stored for at least 15 years.
  • I want to participate in the study.

How does the NKI deal with my privacy?

The Blood Biobank database does not contain names or research data, only codes. The key that connects the names and codes is only accessible to the administrator and coordinator of the Blood Biobank.

If you have a question about the way in which we process your personal data, you can contact the Data Protection Officer. You can reach the Data Protection Officer via privacy@nki.nl.

What are my rights?

You can withdraw your consent at any time without giving reasons. You can request a form for this from the Patient Information Center.

Are there any advantages or disadvantages to this research?

You will not benefit from the research. However, your participation will contribute to the knowledge of components in the blood in relation to cancer. Possible disadvantages consist of the inconvenience that a normal blood draw entails (possibly a bruise and pain around the insertion of the needle). If you participate in the study, you run minimal risk. The client therefore does not have to take out additional insurance from the IRB.

Disclaimer

This translation was generated automatically based on information in Dutch. It has not been reviewed by a medical specialist. The purpose of this translation is to make our information accessible to non-Dutch speakers. However, this information should not be considered a substitute for medical advice from your treating physician. The Netherlands Cancer Institute cannot guarantee the accuracy of this translation. For medical questions or advice, please consult your physician.

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