AYA zorg vrouw op bed met brochure

AYA - Care for Young Adults with Cancer

AYA’s (Adolescents & Young Adults)

Every year, approximately 3800 young adults between the age of 18 and 39 are diagnosed with cancer. That turns your entire life upside down, even though these are supposed to be your best years. You are confronted with an all-encompassing illness. 

AYA care

As a young adult with cancer, you may face specific questions related to your age or situation. You may have normal questions in an abnormal situation. At the NKI, the AYA care team is available for you and any questions you may have. These questions could be about all sorts of topics. The NKI AYA care uses the "Me and my..." age-specific topics. Find out more about these topics at the care network for young adults with cancer, the AYA-Zorgnetwerk.

The AYA care network website also has a questionnaire available in Dutch that you can use to figure out what you're struggling with and how to formulate your questions. You can bring this questionnaire to the hospital. 

Some of the questions you can expect to find on the questionnaire are:

  • Can I still play sports?
  • How should I start a relationship?
  • Can I continue my work or education afterward?
  • How should I tell my children, friends, and other people in my life? 
  • Do I need to cryobank egg or sperm cells to be able to have children later in life? 
  • How to deal with intimacy and sexuality?
  • Can you keep your (student) housing or do you need to move back into your parents' house?
  • How to continue life after treatment? 
  • How do handle the emotions and feelings of my loved ones?

The AYA clinic can support you with any of the questions above, as well as any other struggles you may face as an AYA. Our team offers the support you need to live your life up to your full potential. If necessary, the AYA team can consult other professionals like medical social workers, psychologists, dietitians, and physical therapists. We can also refer you to the Supportive Care Team, a spiritual counselor, rehabilitation physician, or sexologist

The AYA team will not be responsible for your treatment. Your medical specialist will remain responsible for your treatment and screenings, and your clinical nurse specialist and contact person will also still be available for any questions during your treatment. 

What to expect

You can set up an appointment at the AYA clinic during your hospital stay or during treatment at the Outpatient clinic. During your consultation, you can talk about your situation with a clinical nurse specialist AYA/ Together you will investigate what kind of support would be most useful for you. Your first consultation will take approximately one hour. 

AYA Care Team

The Netherlands Cancer Institute's AYA Care Team has plenty of experience and expertise in cancer in young adults. 

The AYA Care Team consists of two medical oncologists (internists) and two clinical nurse specialists:

Eva Swart AYA Jpeg
I am grateful to be able to support AYAs throughout all stages of treatment as well as afterward.
Eva Swart Clinical Nurse Specialist AYAs

Collaboration

The NKI is an AYA center of expertise and is part of the AYA Zorgnetwerk, a care network for young adults with cancer. The NKI collaborates with other hospitals in the region.

Referral

Would you like an appointment? Please ask your medical specialist, clinical nurse specialist, or contact person for a referral. A visit to the AYA clinic won't cost you anything.

Making or changing an appointment

To make or change your appointment, please contact the Planning Back Office 3 at the general phone number, +31 (0)20-5129111. For questions about the clinic, please email AYA@nki.nl.

Scientific research

We conduct scientific research at the NKI, in collaboration with the AYA care network and academic hospitals throughout the Netherlands. We currently have two large-scale trials running at the NKI: the COMPRAYA and SURVAYA studies.

Peer contact

We are trying to develop a peer group at the NKI. 

Would you like to meet peers who are in a similar situation? Please notify your practicing physician, clinical nurse specialist, the AYA clinic, or sent an email to AYA@nki.nl.

Erik Mathijssen Levensboom CU Vogel

Relevant websites

Find more information for peer contact outside of the hospitals on the websites below (in Dutch):

Event calendar

Find an overview of events for AYAs below: