AVL Sarcomas and GISTcentrum

Welcome to the NKI Sarcomas and GIST Centre of the Netherlands Cancer Institute. We specialize in the treatment of sarcomas and gastrointestinal stromal tumors (GIST), malignant tumors that arise in the soft tissue or in the bones. That is why these rare tumors are also called soft tissue tumors.

At the NKI Sarcomas and GIST Centre, our team of expert doctors, nurses and specialists is ready to guide you in the treatment of these rare conditions. You will receive the best possible care with us.

Sarcomen Team 3

NKI Sarcomas and GIST center

What can you expect?

First appointment

Your doctor has referred you to the NKI Sarcomas and GISTcentrum. The diagnosis may already be clear, or your doctor may want to have you examined for a suspicious abnormality. During your first appointment, you will have a conversation with the surgeon and his assistant. This will map out your current symptoms and medical history. A physical examination will also take place. This results in global findings that usually require further investigation.

Research

If more testing is needed, we will schedule follow-up appointments for additional diagnostic tests.

Team meeting

When all the results of the diagnostic tests are known, your situation will be discussed in a multidisciplinary consultation. This is a consultation with a group of specialists who specialize in sarcomas and GIST. They will discuss which treatment is best for you.

Conversation treatment plan

The doctor will discuss the treatment plan with you. You will decide together how you will be treated. At the Netherlands Cancer Institute, we think it is important that you have a say in your treatment. You are an equal discussion partner for us.

Treatment

After this, your treatment will start.

On average, our patients are treated within the following number of days after determining the treatment plan: 

  1. Treatment with medication:              <14 days
  2. Surgical treatment:                 21-42 days*
  3. Radiotherapy treatment:      <14 days

*if no pre-treatment is required

Aftercare

Of course, we schedule appointments after your treatment to keep a close eye on the follow-up. There is also a lot of attention for supportive care within the Quality of Life Center.

gesprek over afspraak
RADIO CT Arbeidsmarkt Ruw Materiaal.01 01 51 14.Still017
Lotje Zuur AVL MDO
Jeantine de Feijter in gesprek
Behandeling beeld
Nazorg team

Read more about the symptoms and treatment here

Why choose the AVL Sarcomas and GISTcentrum?

  • Expertise

    Soft tissue tumors are rare and occur in many different places in the body. They can also behave very differently and do not all react the same to treatment.

    That is why it is important that people with a sarcoma are treated in an expertise center, such as the Netherlands Cancer Institute. Especially in the case of high-risk sarcomas, we increasingly see that treatment in such a center ensures better survival.

  • Research and care under one roof

    That is why you will always be treated according to the latest insights, with the possibility of new treatments. You will receive tailor-made advice from us.

  • Second opinion

    Have you been diagnosed with a sarcoma or GIST in another hospital? You can contact us for a second opinion and/or treatment.

  • Multidisciplinary

    GIST is a rare disease for which a multidisciplinary team, assessment and treatment advice is indispensable. That is why the pathologist, radiologist, surgeon and medical oncologist work together at the Netherlands Cancer Institute. This multidisciplinary sarcoma team has a lot of experience with GIST.

  • Comprehensive DNA test

    At the Netherlands Cancer Institute, we use the Whole Genome Sequencing test (WGS test). This is an extensive DNA test in which the entire DNA of a tumor is read. This is very important for the correct diagnosis and for the best tailor-made treatment.

  • Support

    A lot of attention is paid to supportive care, such as physiotherapy, psychological help and rehabilitation. We also pay a lot of attention to you and your loved ones.

  • 1631

    Total number of patients with sarcomas
  • 386

    new patients
  • 27

8.7
  • 8.9
  • 8.8
  • 8.9
  • 8.4
  • 8.7

The sarcomas treatment team

Our specialists specialize in sarcomas/soft tissue cancer and gastrointestinal stromal cell tumors (GIST). In a multidisciplinary consultation, your situation will be discussed on the basis of your results and medical data and it will be determined which treatment is best for you. Your doctor will then discuss this plan with you.

At the Netherlands Cancer Institute, you are an equal discussion partner and you help decide on your own treatment.

Internists

Pathologists

Plastic surgeons

Radiologists

Radiation oncologists

Nurse specialists

Treatment team GIST

Internists

Gastroenterologists

Pathologists

Radiation oncologists

Nurse Specialists

8.9
  • 9.2
  • 9.0
  • 9.0
  • 8.9
  • 8.7

Clinical studies (trials)

In addition to being a hospital, the Netherlands Cancer Institute is also a renowned research institute in the field of cancer. Every day, 700 passionate researchers work on a better understanding of cancer and how we can cure it. We also do research for esophageal and stomach cancer. We call these scientific studies or trials. If there is a study that suits you, your doctor will discuss it with you.

Read more about making an appointment or second opinion here